Thursday, July 31, 2008

I am devastated...

I just don't even know what to do or think or anything. We found out that the munchkin needs a feeding tube and will be getting it next Thursday. I am so definitely opposed to it that I can't even take it. He has been progressing so much lately with eating and movement that I feel like this would be such a setback. We also have to patch his eye for 2 hours per day because he refuses to wear his glasses. So we have therapy 2x per week 30 minutes away, 2 hours per week someone comes to the house to work with them, The munchkin has to be in his stander for however long he can handle it, we still have to have him wear his glasses (try), he has his hand brace that he wears all day. He needs to eat more pureed food than other stuff and I have to do exercises with him. The feeding tube will be added time. Plus there are 3 other children that need attention and a house that needs cleaning and so on and so on. And the hospital stay is 2-3 days which will be his 3rd hospital stay, first was for his double henia surgery, 2nd was when he swallowed the battery and this will be the third. I am completely overwhelmed and just devasted that we are veering no careening off the road that leads to normalcy. I am venting, thanks for listening.

He sure is cute though, little stinker!




5 comments:

gypsy@Hebrews11:13 said...

My email is lydia@strongsignals.net and I would LOVE to help you by listening or offering encouragement! It's funny how much we have in common- we do therapy twice a week also and it's a 30 minute drive one way as well. Lauren has had 12 (I think) hospitalizations/surgeries to date and we are looking at possibly a bladder surgery this fall. So I know a little of what you are going through even though EVERY SITUATION IS UNIQUE at everything is relative! PLEASE email me!
-Lydia

brossettelewis said...

I'm sorry normalcy is fading away, especially when he is making strides. I'm sorry it's overwhelming too.

Mommy2HayLo said...

Kristen, Sorry to hear that your little guy will need a feeding tube. I'll be praying!
PLEASE let me know if there's anything I can do to help. Meals, childcare etc...

Genny said...

I'm so sorry hun. I can't even imagine how frustrating this is for you and your family. He seems like he is doing so well! I will be praying that this is the right thing (somehow), and also for your peace. He is so cute and I miss not seeing him- I'm in infants this week, hope to see you guys!

Webb Family said...

Remember..."my grace is sufficient for you" . We will be praying.